Attomarker Long COVID Group
We have created a collaborative space for people living with long COVID and those caring for them to share experiences, access reliable information, and connect with others.
How does it work?
It’s currently in a pilot phase, open to 500 people to test the concept. If the group is valuable we’ll look at expanding it so more people can benefit. Here is how to get involved:
- Sign up using the form and agree to the group guidelines: https://tinyurl.com/b47kd7z6
- Get the invite — once approved, you’ll receive the private WhatsApp links to join the Group.
We’re starting on WhatsApp, as it lets us create sub-groups for different discussions. Over time, we may explore other platforms depending on what members find most useful.
Who can join?
Anyone who is living with long COVID, and those caring for someone with long COVID. Members confirm this when signing up.
Group Guidelines
- Respect all members.
- Keep discussions confidential — do not share content outside the Group.
- No promotion, selling, or marketing of products, services, or organisations.
- This group is not a substitute for professional medical advice, diagnosis, or treatment. If you have concerns about your health, or are in crisis or need urgent help, you must contact your healthcare provider.
Frequently Asked Questions
Is the group free to join?
Yes, the community is completely free to join.
Can anyone join the group?
The group is open to anyone living with long COVID, and those caring for people with long COVID. Members must confirm at entry that they are affected in one of these ways.
Are there any terms and conditions associated with the group?
Yes, the guidelines are:
- Respect all members.
- Keep discussions confidential — do not share content outside the Group.
- No promotion, selling, or marketing of products, services, or organisations.
- This group is not a substitute for professional medical advice, diagnosis, or treatment. If you have concerns about your health, or are in crisis or need urgent help, you must contact your healthcare provider
What happens if someone breaks the rules of the group?
If someone does not follow the rules, Attomarker administrators, in consultation with Founding Members, may issue a warning or remove individuals from the group. This is to protect the safety and wellbeing of all members.
Who are the Founding Members?
Founding Members are volunteers with lived experience of long COVID who help shape the group, provide peer support, and advise on how the group develops.
How do I become a Founding Member?
Founding Members are invited by Attomarker. We keep this group small to make sure it is manageable and representative.
How is my privacy protected?
Your phone number will be visible to other members inside WhatsApp, but your personal details will not be shared outside the group. By joining, you agree that any views or experiences shared must remain confidential and must not be shared outside the group.
Can I leave the group?
Yes. You are free to leave the group whenever you choose using WhatsApp settings. You can also request to re-join later if you change your mind.
Will Attomarker be promoting its tests in the group?
No. The group is not for promotion, selling, or marketing of products, services, or organisations. Attomarker may share updates about research or testing when relevant, but the focus is on awareness, support, and amplifying patient voices.
What kind of content will be shared?
You can expect:
- Updates on long COVID research and testing.
- Invitations to share your story or feedback.
- Resources and news relevant to the long COVID community.
- Peer-to-peer discussion in sub-groups.
What if I see misinformation or harmful content?
Please report it directly to a member of the Attomarker team or a Founding Member. We will act quickly to remove harmful content and protect the safety of the group.
Is this group a substitute for medical advice?
This group is not a substitute for professional medical advice, diagnosis, or treatment. If you have concerns about your health, or are in crisis or need urgent help, you must contact your healthcare provider.